|
|
| Toolkit Sections |
 |
Home |
 |
Background and Introduction |
 |
Data Collection |
 |
Data Linkage |
 |
Data Sharing |
 |
Collaboration Examples |
 |
Communication Resources/Tools |
|
 |
|
| Regardless of the specific health focus, creating a tribal advisory committee or including tribal members on existing committees or institutional review boards (IRBs) offer many benefits to public health researchers and practitioners. It assures the AIAN perspective is represented in research and health promotion activities targeting tribal communities, thereby increasing the relevance and impact of the work. It improves work with target populations. And it empowers tribal communities to take ownership of their own health improvement by participating in the design of surveys or interventions and providing input into formal documents and reports containing information on AIAN peoples. |
| |
| Fortunately, participatory research is no longer a novel concept. Below is a list of several resources to assist the process. |
- Walk Softly and Listen Carefully, Building Research Relationships with Tribal Communities—produced by the National Congress of American Indians and Montana State University, Center for Native Health Partnerships—explores how culture, tribal sovereignty, and indigenous knowledge impact research with Native communities.
- The Northwest Portland Area Indian Health Board’s collection of research guidelines and sample templates addresses everything from researcher responsibilities to consent forms to IRB checklists.
- The Northwest Portland Area Indian Health Board’s list of guidelines for “conducting research in Indian Country” provides tips for improving sensitivity, communication and researcher responsibility.
- The Environmental Health Perspectives’ article, “Conducting Research with Tribal Communities,” discusses sovereignty, ethical and data-sharing considerations applicable to community-based research with American Indian Nations. It includes model data-sharing and confidentiality agreements that meet tribal and academic authorities’ guidelines.
- The factsheet, “Responsible Research Partnerships with Indigenous Communities,”—produced by University of Washington’s Center for Ecogenetics and Environmental Health and Center for Genomics & Healthcare Equality—outlines strategies to achieve ethical and equitable research partnerships with Indigenous communities.
- The Journal of Extension article lists suggestions for improving research sensitivity and responsibility to tribal governments and communities.
- “More Tips: What if a Cooperative Extension Professional Must Work with Native American Institutional Review Boards?” addresses, as the title suggests, successful interactions with Native American IRBs when performing research on tribal lands.
- The AIAN Genetics Resource Center website provides tribal leaders and AIAN peoples with tools and information to enable informed decision-making about genetic research.
- “Principles for the Conduct of Research in the Arctic”—prepared by the Social Science Talk Force of the U.S. Interagency Arctic Research Policy Committee and posted on the website of the Alaska Native Knowledge Network—provides guidance on the ethical conduct of research in Arctic regions.
|
| This list of agency contacts includes potential partners for data-sharing in Indian Country. |
|
|
| |
|
| |
|
