Long-term Follow-up Planning Guides?
We are working on updating, and further developing, our
long-term follow-up plan that is an annex within the All Hazards Response and
Recovery Plan (below is a description of our plan). Our long-term follow-up
plan can apply to any event with long-term health effects including, but not
limited to, radiation and chemical events.
While there are many disaster epidemiology tools out there,
I haven’t run across best practices, guidance, or protocols for long-term
follow-up. We plan on utilizing the Rapid
Response Registry to collect information on those exposed and ASTHO’s legal
tools for preparing for legal obstacles.
Does anybody know of tools, protocols, or examples of best practices for
long-term follow-up? Please leave a link or let me know where I could
locate this information, thank you!
The Long -Term Surveillance Protocol
Development function plans and initiates ongoing, systematic collection of data
necessary for tracking health-related outcomes that may be attributed to an
emergency event but which occur months or years following the response and
recovery period. Long-term health-related outcomes include chronic health
effects or diseases such as cancer, respiratory disease, disabling injuries,
and reproductive outcomes for which a latency period (the time between the
exposure to a hazard and the onset of clinical disease) of several months to
years is likely.
In addition to planning and initiating
data collection in response to an event, this function also plans for ongoing
data management, analysis, interpretation, and dissemination of findings by
integrating newly collected event-related data into the department's routine
public health surveillance programs. Routine chronic disease surveillance
programs currently consist of respiratory disease, cancer, heart disease,
stroke, injuries, diabetes, birth outcomes, and mortality. As needed, this
function may recommend and plan for new surveillance activities for anticipated
outcomes that are not routinely tracked by existing programs.